The ADSHG Online Forum is a secure, supportive, and informative digital community hosted by the Addison’s Disease Self-Help Group (ADSHG), a UK-based charity dedicated to improving the lives of people with Addison’s disease and other forms of adrenal insufficiency. This moderated forum offers a welcoming space for individuals, caregivers, and supporters to connect, share experiences, and find reliable information about living with a rare endocrine disorder.
Whether newly diagnosed or managing adrenal insufficiency for years, members can participate in meaningful discussions on topics such as medication management, symptom tracking, emergency preparedness, and lifestyle challenges. The forum also includes practical tips on traveling with steroids, understanding blood test results, coping with fatigue, and handling adrenal crises.
One of the most valuable features of the ADSHG forum is its sense of community and reassurance. Members often share personal stories that help others feel less isolated, while volunteers and moderators—many of whom live with adrenal insufficiency themselves—help guide conversations, offer insight, and direct users to trusted resources.
The platform is free to join, though full access may be granted to ADSHG members. It is designed to be safe, respectful, and private, ensuring a judgment-free environment for asking questions, venting frustrations, and learning from others with similar experiences. The forum is especially useful for people navigating the often confusing and overwhelming aspects of adrenal health, offering clarity through lived wisdom and peer support.
Whether you’re looking for advice on adjusting your fludrocortisone dosage, preparing for surgery, or connecting with others who truly understand, the ADSHG Online Forum is a compassionate and empowering space to find your footing and your voice.
