Sjögren's Foundation Support Groups & Networks

Living with Sjögren's disease can feel isolating — a condition that affects multiple body systems, causes unpredictable flares, and is still widely misunderstood. The Sjögren's Foundation's Support Groups & Networks directory exists precisely for this reason: to connect patients, caregivers, and family members with others who truly understand the day-to-day realities of this condition.

Since 1983, when Elaine K. Harris founded the first Sjögren's support group, the Foundation has grown its network to more than 65 volunteer-run groups across the United States and Canada. These groups meet regularly, both in-person and virtually, and provide a safe, welcoming space to share experiences, practical tips, and emotional encouragement. The people facilitating these groups are often Sjögren's patients themselves, which means conversations tend to be genuine, empathetic, and deeply relevant.

The Foundation's support network goes beyond local groups. Their online community options allow members in rural areas or those with mobility challenges to still benefit from peer connection. Whether you prefer attending a local chapter meeting or joining a virtual session from home, there is an accessible path to community.

For the newly diagnosed, these groups are especially valuable. Sjögren's symptoms — dry eyes, dry mouth, fatigue, joint pain, and potential organ involvement — can be overwhelming to navigate alone. Connecting with someone who has been living with Sjögren's for years can provide reassurance, practical advice on managing dryness and fatigue, and guidance on advocating for yourself with medical providers.

Caregivers and family members are also welcome in the Sjögren's support network. Loved ones benefit greatly from understanding the condition better and finding their own support system alongside the patient.

To get started, visit the Support Groups & Networks page on the Sjögren's Foundation website, where you can search by location or request to join an online group. Participation is free, and no formal membership is required. For anyone living with Sjögren's, finding community through this network can be one of the most meaningful steps toward managing life with this condition.